IBD Patient Education Considerations
It can be very challenging for a doctor to reach a definitive diagnosis. On average, it takes 36 months and approximately 4.5 procedures for a patient to be diagnosed with Inflammatory Bowel Disease. Early diagnosis is key for these patients, because the longer the disease impacts the bowel, the more penetrating the disease becomes, and the higher the risk of further health concerns. It is important for patients to ask for a definitive diagnosis and treatment plan.
Living with IBD has its challenges. Since it is a chronic disease, there are times when patients will feel fine and there are flare-ups where patients can become very sick. As someone taking care of these patients, it’s important to keep in mind what they are going through. Patients need to find the right physician for them. Since this will be a long road, they should find a physician with whom they are comfortable and confident about having a treatment plan in place. In addition, remind patients that they need to be patient. Medications can take some time to start working, and the first one may not be the right one. Flexibility is needed in the event that medications need to be adjusted over time. Patients must also learn to listen to their body. There will be times when they need to rest and cannot keep up the busy schedule they may be accustomed to.
One of the most important things patients need to know is that it is very important to keep taking their medication, even if they feel fine, to prevent future flare-ups. If one stops their medication, it is possible that when they really need it, it may no longer work for them. Because symptoms do not correlate with disease activity, a lot of damage can be done to the intestines without realizing it.
Lastly, there are many organizations that offer a wealth of resources on IBD including up-to-date information and support groups where one can meet others who are going through the same journey. Some organizations to recommend include the Crohn’s & Colitis Foundation of America (CCFA) as well. www.YouandIBD.com
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